It’s funny how certain dates through the year have a meaning to you in one way or another. It could be celebrations or sad milestones, a certain date can bring back memories and feelings.
February the 6th is the day that we received Ethan’s diagnosis. I remembered the date last year and thought perhaps this year I would be too busy to even think about it. I was wrong, I was aware of the dates more than ever as I counted down the days this week until today.
I don’t think I’m marking this date because it makes me sad, I just think it’s a date that I will never forget as it has had a massive impact on our life.
What Have We Learnt
Sleep is a luxury. Communication isn’t just about speech, but you long for it when you don’t understand what your child is asking of you. Silence isn’t golden, it’s a horrible place that can only be left on someone else’s terms. Life can be very intense. Everything has a routine. Food is a battleground. Waiting lists can last for years. There can be months between appointments. Visiting people can be a complete nightmare. Anxiety can stop you in your tracks. Leaving the house must be planned with military precision. People will stop talking to you. You have to learn to fight for your children. There is a lack of understanding. Meltdowns are nasty. Obsessions are interesting. You will get stared at. The future is a scary place. Live in the here and now. Education isn’t simple. Potty training could take a while.
What We Love
Learning to enjoy the simple things. Going on thrill seeking adventures. Happy flapping and jumping. Amazing smiles. Fantastic giggles. Loving water. Loving bubbles. Letters and numbers are fun. Mummy is an amazing word to hear.
Our amazing little boy, an adoring big brother. Who has been our greatest life teacher. Our little superstar!