Today marks another Autism Awareness Day and reminds me that autism wasn’t something we were aware of just a few short years ago.
I wasn’t planning on writing a blog post today but looking back at my previous posts I realised I didn’t mark this day last year. I also didn’t mark Ethan’s diagnosis day for the past two years like I used to. I think this could be a good thing, that perhaps autism isn’t such the shock that it once was but I think the truth of it is we are just so busy. Busy juggling autism, our very active son, a very active toddler and life in general.
What Autism Means To Us
Autism is part of our sons personality. It brings with it many struggles and joyful moments. Autism means our son has delays and we have to learn how to work with him and his needs. We have had to learn how to communicate in many different ways and think about how we express our communication. Autism means planning, planning and more planning. Just to go to the shops has to be planned. Autism means meltdowns and trying to work out why they have happened. Autism means not knowing if you will ever be able to have a meaningful conversation with our son. It also means worrying about who will look after our son when we have gone.
Our Struggles With Autism
At the moment we are struggling with discipline. Finding something that works and we all understand is becoming a challenge. We also always struggle with sleep and the lack of it. It feels like there is always a different challenge that we have to overcome.
Our Autism Progress
There has been lots of progress since our son received his official diagnosis. We now have some speech, sometimes even prompted sentences. But I would still describe him as pre-verbal. Our son can now read some words and will read books he brings home from school. He loves logos and a visit into town to look at the logos is a real highlight for him. He has recently discovered goggle maps and will work out the places we have visited.
Autism is a Spectrum
Autism is a spectrum and we must remember that everyone is on a different journey. Would our life be easier with without autism? Possibly but I’m sure we would have other issues to overcome. That doesn’t mean we would change our son but we would love to make the world easier for him. This is why Autism Awareness Day is a day that should be remembered, in the hope that our sons future world will improve with greater understanding.