• Ethan

    Autism and the Head Wound!

    Ethan has major anxiety issues around doctors, to the point that only seeing a doctor makes him scream uncontrollably. It’s terrible to see you son get so distressed and seeing a doctor often results in Ethan having to be pinned down to be examined. This means I only try to take Ethan to the doctors when it is absolutely necessary. At the signs of any illness I’m normally frantically searching google hoping I can work out what the issue is. I’m not a doctor so most of the time I have to go on my gut feelings, praying that my guess-work is correct. My biggest fear is that something will…

  • Word Of The Week

    Word Of The Week – Haven

    word of the week

    This week our word of the week is Ethan was awarded a Family Fund voucher for a Haven break so that we could break up the summer holidays a bit. Part of our keep Ethan busy plan. We decided that we would visit Great Yarmouth as it is far enough from us to make us feel like we have gone away, but not too far to go in the car. Ethan is struggling with car journeys at the moment and we also don’t like to push our little car too far as she is getting a little old now. I had lots of expectations for this week, I had visions…

  • Word Of The Week

    Word Of The Week – MMR

    word of the week

    This week my word of the week is It was time for Little E to have her MMR. To be honest it was the third time I had booked the appointment as I cancelled it the first two times. Let me start by saying I DO NOT believe that the MMR brought on Ethan’s autism. Looking back I now know that we was developing differently as soon as he was born. But I wanted Little E to be feeling 100% before giving her the MMR and for the past two weeks she has had a bit of a cold. It’s terrible how press reports can make you question your decisions…

  • Autism

    Sibling Interaction and Autism

    When Ethan was diagnosed with autism the thought of having another child was the furthest thought from our minds. We were scared that another child would mean another diagnosis as there is a one in five chance that another child would also be on the spectrum. It took time but we always saw ourselves as a four and we decided not to give up on that dream. When we discussed this with Ethan’s pediatrician she actually advised us not to have any more children. Her reasons being that Ethan wouldn’t notice another sibling because he lives in his own little world. He can’t or wouldn’t show any empathy and don’t even…

  • Ethan

    Ethan’s First Respite Day

    If funding allows Ethan’s school offers play days during the school holidays. It’s a way of keeping the children used to school during the break, in the hope that the school return will be easier. It also offers a respite day to their families as a school holiday and the lack of routine it brings can be a nightmare for someone with autism. I was worried how Ethan would handle being taken into school and I kept saying that he was going to school for the day. This was always answered with a ‘No’ and I kept everything crossed that the day would go well. Darren was working so I…

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